1.1    .................... moves to amend H. F. No. 906 as follows:
1.2Page 1, after line 3, insert:

1.3    "Sec. 2. Minnesota Statutes 2006, section 13.3806, is amended by adding a subdivision
1.4to read:
1.5    Subd. 21. Birth defects registry system. Data on individuals collected by the
1.6birth defects registry system are private data on individuals and classified pursuant to
1.7section 144.2215.

1.8    Sec. 3. Minnesota Statutes 2006, section 144.2215, is amended to read:
1.9144.2215 MINNESOTA BIRTH DEFECTS INFORMATION SYSTEM.
1.10    Subdivision 1. Establishment. The commissioner of health shall establish and
1.11maintain an information system containing data on the cause, treatment, prevention, and
1.12cure of major birth defects. The commissioner shall consult with representatives and
1.13experts in epidemiology, medicine, insurance, health maintenance organizations, genetics,
1.14consumers, and voluntary organizations in developing the system and may phase in the
1.15implementation of the system. At the time of diagnosis of a birth defect, the commissioner
1.16shall offer the parents with their informed consent a visit by a public health nurse or other
1.17qualified individual to interview the parents about:
1.18(1) possible exposure to toxic substances in their environment, either in their home,
1.19workplace, or elsewhere;
1.20(2) all previous home addresses, occupations, and places of work including from
1.21childhood;
1.22(3) the time and place of any military service during which toxic exposure may
1.23have occurred; and
1.24(4) any other occasions or sites of possible toxic exposure.
1.25    Subd. 2. Duties of commissioner. The commissioner of health shall design a
1.26system that allows the commissioner to:
2.1    (1) monitor incidence trends of birth defects to detect potential public health
2.2problems, predict risks, and assist in responding to birth defects clusters;
2.3    (2) more accurately target intervention, prevention, and services for communities,
2.4patients, and their families;
2.5    (3) inform health professionals and citizens of the prevalence of and risks for
2.6birth defects;
2.7    (4) conduct scientific investigation and surveys of the causes, mortality, methods of
2.8treatment, prevention, and cure for birth defects;
2.9    (5) modify, as necessary, the birth defects information system through demonstration
2.10projects;
2.11    (6) remove identifying information about a child whose parent or legal guardian has
2.12chosen not to participate in the system as permitted by section 144.2216, subdivision 4;
2.13    (7) protect the individually identifiable information as required by section 144.2217;
2.14    (8) limit the dissemination of identifying information as required by sections
2.15144.2218 and 144.2219; and
2.16    (9) use the birth defects coding scheme defined by the Centers for Disease Control
2.17and Prevention (CDC) of the United States Public Health Service."
2.18Renumber the sections in sequence and correct the internal references
2.19Amend the title accordingly